How I'm doing

Mentally- it is taking it' toll on me.  I know there are people in the world who just got news they have cancer etc,  there are people who just got news their loved ones have passed.... People have said " I look okay", yeah I may look ok on the outside, physically inside I'm broken, my bladder is broken, I do not live a normal life because this disease controls how I feel, controls if I 'can' be social or not, there are times I really want to but I cannot force myself out of bed.  My bad days are entered around hot Epsom salt bath, lots of medication, heating pads, there is also days of missing work  and this off course could result in losing my job.....

I used to be a happy person, a person who loved to laugh, loved to be with friends and was not stressed at all....
Now I'm usually stressed because I never know when pain could come, it can be caused by certain foods or drinks
No spicy foods, no tomato sauce, no salsa, no caffeine, no flavored (fruit)juices, no orange juice, no oranges, no pizza, nuts, salad dressings, no breads except rye because of the white or whole wheat flours, no rice
That leaves very little that I can eat or drink , here is a more detailed list 

Emotionally- I feel like I fail as a wife- my hubby did not have a sick wife when he married her, I have not been sick with this- no he does not complain, but being intimate and then have paid, really scares ya away from being in the mood.... sorry for the TMI 

Last monday I saw a new doctor- she prescribed a new medication that has to be sent from the US, it has a lot of scary side effects but I am willing to try it. She is hopeful that it will work for me, it freezes the bladder and takes the pain away, it is better then the other medication they have me on. 

Thank you for those who asked about me, it means a lot 


  1. My thoughts and prayers are with you. Hang in there hun, I know that is easier said than done, but hold on to your faith. God is on your side and with His blessings, you'll find a way through this cloud of darkness. I will continue to pray for you. xo

  2. I can't even imagine living in that kind of discomfort... You are brave to share your experience!

  3. Praying this new medication works. I hope it helps being able to share your emotions as you struggle through your condition.

  4. Thoughts and prayers are with you. I hope things start to look up for you and that you feel better soon!

  5. It is so brave of you to share your experience. There are so many mothers living with pain. Knowing that they are not alone must help. Sending healing thoughts your way. :)

  6. I'm so sorry about the pain you are in and I'm praying for you! When I struggled with Rheumatoid Arthritis I felt the same way - "I looked ok" but my life was miserable. So I can totally relate on all levels. God healed me and I believe He can heal you too! Whether supernaturally or through this medication, whether in an instant or over time, God still heals!

  7. Sending you prayers. I'm so sorry you're going through this. I hope this new medicine provides you with the relief you deserve. Thank you for sharing something so personal that can hopefully help others.

  8. Prayers and good thought coming your way! My family is struggling with a person with cancer. It is hard. Best wishes!!

  9. I didn't know you were going through this. Praying for the Lord to strengthen you through this and encourage you through the promises in His Word.

  10. I am so sorry to heart this. I am praying for you this evening.

  11. Terri, wishing you speedy healing. May God's love and faithfulness help you to endure the hard times. I'm hoping this new medication will be able to give you some good relief. Blessings!


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